Good news – the pet scan showed no spread of cancer, only stage 2 anal cancer.
I was to get chemo port implanted tomorrow but it is now on Thursday, September 22nd (some problem with the room they use, my chemo doctor was not happy about that). Chemo and radiation will begin Monday the 26th. Treatment should be for six weeks if all goes well. Radiation is daily Monday-Friday, only for about 15 minutes. It’s a 10 minute walk from where I live, which will make for a nice stroll.
Meantime, I often feel tired, dealing with some pain and digestive issues. Today, a doctor’s appointment and lots of phone calls with doctor’s office to reschedule everything. That takes it out of me.
Self care is resting, drinking lots of water, eating healthy, soaking in the bathtub, reading and streaming series and movies.
A couple of friends from Eugene came through Missoula this week. Our few hours together were filled with hugs, laughter and tears – good medicine. They took snapshots as I gave them a tour of the colorful, funky, one of a kind, historic community building I live in.
I am so thankful for my supportive community, friends and excellent team of medical care.
For ease of communication, I will continue to share updates here.
I’ll leave you with a link to Suleika Jaouad’s Isolation Journals newsletter including writing prompts from guest writers. She is an inspiration as she continues to create through her journey with leukemia.
Prompt from Sophie Blackall:
Make a list of things to look forward to. Include big things if you’d like, but also the small everyday things that buoy your spirits, make you laugh, make you feel alive.
She also suggest,
If you have an egg in your house, you can draw a face on it. No one will stop you. Then you will look forward to opening the fridge.
“Hello, Egg!” you’ll say.
You will amuse yourself no end. Trust me.
Thanks as always for reading.
Many of you know we lost the legendary Barry Lopez on Christmas Day after his struggle with terminal cancer. For lovers of language, this world and it’s people it is a great loss. My heart hurts for those close to him, his wife and daughters. They have endured much loss this sorrowful year. The Oregon fires up the McKenzie River, left their property charred and them unmoored. They received the midnight knock on the door demanding they leave within minutes. They grabbed the cat and left. The house is damaged but fixable.
On Christmas Eve, this piece was published in LitHub, An Era of Emergencies is Upon Us and We Cannot Look Away. A gift to have Barry’s viewpoint that day.
In an All Things Considered interview, March, 2019, Barry shares some of how his cancer diagnosis changed him and created more empathy, “I imagined in everybody I passed there was some story that they carried with them that would break your heart. So how could you have the temerity to approach that person and say, here’s what’s wrong with you?”
A few days ago, Literary Arts: The Archive Project re-aired an interview with Barry. It’s worth a listen, more than once, to glean all he has for us to contemplate. A grown up is someone who no longer needs supervision, “meaning they know immediately how to act in a way that harms no one and takes care of everybody in so far that is possible. We are in a time where we are desperate for grown-ups, people who have gotten over themselves, to come together and using the power of imagination that each of us has, create a landscape that no one has ever seen before.” Barry Lopez
In Barry’s honor donations may be made to McKenzie River Trust.
A note for you: If you are looking for a way to seek connection, inspiration and a consistent practice of journaling, The Isolation Journals is offering journaling prompts free for ten days beginning January 1st. Click here: https://www.theisolationjournals.com/10-day-challenge
I am off to buy black-eyed peas to cook and serve on New Year’s Day in order to bring good luck for this new year.